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New Rochelle Community Rallies Around 6-Year-Old With Rare Genetic Mutation

The quest of a family to understand the causes for their daughter's global developmental delays.  New advances in science can now detect previously undetectable conditions, such as Morgan's.
The quest of a family to understand the causes for their daughter's global developmental delays. New advances in science can now detect previously undetectable conditions, such as Morgan's. Video Credit: The Yellow Brick Road Project, Inc.

A Westchester community is rallying around a 6-year-old girl from Westchester suffering from one of the rarest genetic diseases around the globe.

A New Rochelle family has launched the Yellow Brick Road Project - named in the spirit of “The Wizard of Oz,” and the friends Dorothy makes along her journey - in an effort to raise awareness and eventually cure HNRNPH2 mutations , which have impacted their daughter.

“Like the Scarecrow who wishes for a brain, our girls’ neurological development is severely impaired and impacts everything; we strive to improve their cognition. Like the Cowardly Lion, each one affected suffers from anxiety; we strive to find ways to give them confidence and courage to navigate in the world,” according to its founders.

“And what about the Tin Man? He longs for a heart in the story. Like him, we strive to give our girls a more fulfilling life, free from HNRNPH2 mutations and everything this despicable disease has stolen from them.”

The Yellow Brick Road Project was co-founded by Andrea Damast and Trish Flanagan, whose daughter, Morgan has been touched by an HNRNPH2 mutation, and is one of 20 girls worldwide with the genetic disease. Now the community is rallying around Morgan, including her classmates, who have decorated yellow bricks throughout the school to raise awareness.

Those interested in donating to the Yellow Brick Road Project can do so here.

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